PRADER-WILLI SYNDROME. Some of you may know my sweet little boy suffer from a rare birth defect called Prader-Willi Syndrome. I really should not say suffers because he is doing AMAZING! If you don't know anything about Prader-Willi Syndrome you should at least know this. PWS affects 1 in every 15,000 babies and is a life long conditions. It consist of many problems but the most important is that people with PWS are ALWAYS HUNGRY, NEVER FULL. Between the ages of 3 and 7 these kids with PWS begin food seeking and although many of them are taught not eat unless allowed, there bodies are CONSTANTLY telling them "I'M HUNGRY!"
PLEASE, PLEASE TAKE JUST A FEW MINUTES TO GO AND NOMINATE THE FIGHT FOR A CURE AND HELP RAISE MONEY FOR RESEARCH TO HELP PEOPLE JUST LIKE MY LITTLE GUY. IN NOMINATING THIS PROJECT YOU DO NOT HAVE TO DONATE ANY MONEY. THE NOMINATION IS SO AMERICAN EXPRESS WILL PICK OUR PROJECT AND DONATE THE MONEY TO RESEARCH.
THANKS!
JUST GO TO
www.membersproject.com/project/view/NM35HQ
AND LOG IN AS A GUEST AND THEN CLICK ON NOMINATE
1 comments:
You are so awesome/strong for trying to bring awareness to pws. Your little guy is so lucky to have a great mom like you!
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